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Bilateral Papilledema and Intact Vision With Normal Intracranial Pressure

Educational Objective
Based on this clinical scenario and the accompanying image, understand how to arrive at a correct diagnosis.
1 Credit CME

A 23-year-old woman presented with 6 months of intermittent bilateral retro-orbital pain associated with blurred vision and wavy lines in the vision of both eyes, followed by worsening numbness and tingling of her hands and legs. Medical history was notable for mild obesity (body mass index of 30 [calculated as weight in kilograms divided by height in meters squared]).

Visual acuity was 20/20 OU, with briskly reactive pupils OU and no relative afferent pupillary defect. Intraocular pressure was 17 mm Hg OU. Ishihara color plates were 13/13 OU. Extraocular movements were full. Ophthalmoscopic examination revealed blurring and elevation of the nasal margins of the optic disc consistent with grade 1 optic disc edema in both eyes (Figure). Optical coherence tomography showed an elevated mean peripapillary retinal nerve fiber layer thickness of 170 μm OD and 150 μm OS. Automated visual fields demonstrated subtle enlargement of the blind spots.

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POEMS (polyneuropathy, organomegaly, endocrinopathy, monoclonal gammopathy, and skin changes) syndrome

B. Serum vascular endothelial growth factor

POEMS syndrome is a rare multisystem disorder caused by a disorder of plasma cells and is theorized to result from an overproduction of proinflammatory cytokines and vascular endothelial growth factor (VEGF).1,2 Diagnosis requires the presence of all mandatory criteria, 1 major criteria, and 1 minor criteria. Mandatory criteria include polyneuropathy and monoclonal plasma cell disorder; major criteria include osteosclerotic lesions, Castleman disease, or elevated VEGF; and minor criteria include organomegaly, volume overload, endocrinopathy, skin changes, papilledema, or thrombocytosis.2

Studies have shown that about half of patients with POEMS syndrome have optic disc edema, which is typically bilateral with intact vision and can mimic papilledema caused by elevated intracranial pressure (ICP).3 However, at least half of patients with bilateral optic disc edema in the setting of POEMS syndrome will have normal ICP.3 Therefore, the etiology of the optic disc edema in POEMS syndrome is unclear, but high systemic VEGF levels are thought to be contributory, potentially causing increased vascular permeability.3 In addition to optic disc edema, other more rare ocular manifestations of POEMS syndrome include macular edema, serous macular detachment, uveitis, and neovascularization of the disc and choroid.4

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Article Information

Corresponding Author: John J. Chen, MD, PhD, Department of Ophthalmology, Mayo Clinic, 200 First St SW, Rochester, MN 55905 (chen.john@mayo.edu).

Published Online: April 28, 2022. doi:10.1001/jamaophthalmol.2022.0261

Conflict of Interest Disclosures: None reported.

Additional Contributions: We thank the patient for granting permission to publish this information.

References
1.
Ali  T , Qazilbash  MH .  POEMS syndrome: a multisystem clonal disorder.   Eur J Haematol. 2021;106(1):14-18. PubMedGoogle ScholarCrossref
2.
Brown  R , Ginsberg  L .  POEMS syndrome: clinical update.   J Neurol. 2019;266(1):268-277. PubMedGoogle ScholarCrossref
3.
Kaushik  M , Pulido  JS , Abreu  R , Amselem  L , Dispenzieri  A .  Ocular findings in patients with polyneuropathy, organomegaly, endocrinopathy, monoclonal gammopathy, and skin changes syndrome.   Ophthalmology. 2011;118(4):778-782. PubMedGoogle ScholarCrossref
4.
Carey  AR , Jeyaseelan  P .  Peripheral retinal leakage in POEMS syndrome.   Int J Retina Vitreous. 2021;7(1):6. PubMedGoogle ScholarCrossref
5.
Dispenzieri  A .  POEMS syndrome: 2019 update on diagnosis, risk-stratification, and management.   Am J Hematol. 2019;94(7):812-827. PubMedGoogle Scholar
6.
Ahmad  SR , Moss  HE .  Update on the diagnosis and treatment of idiopathic intracranial hypertension.   Semin Neurol. 2019;39(6):682-691. PubMedGoogle Scholar
7.
Wall  M , McDermott  MP , Kieburtz  KD ,  et al; NORDIC Idiopathic Intracranial Hypertension Study Group Writing Committee.  Effect of acetazolamide on visual function in patients with idiopathic intracranial hypertension and mild visual loss: the Idiopathic Intracranial Hypertension Treatment trial.   JAMA. 2014;311(16):1641-1651. PubMedGoogle Scholar
8.
Keddie  S , Foldes  D , Caimari  F ,  et al.  Clinical characteristics, risk factors, and outcomes of POEMS syndrome: a longitudinal cohort study.   Neurology. 2020;95(3):e268-e279. PubMedGoogle ScholarCrossref
9.
Hata  M , Miyamoto  K .  Causes and prognosis of unilateral and bilateral optic disc swelling.   Neuroophthalmology. 2017;41(4):187-191. PubMedGoogle ScholarCrossref
10.
Rigi  M , Almarzouqi  SJ , Morgan  ML , Lee  AG .  Papilledema: epidemiology, etiology, and clinical management.   Eye Brain. 2015;7:47-57.PubMedGoogle Scholar
AMA CME Accreditation Information

Credit Designation Statement: The American Medical Association designates this Journal-based CME activity activity for a maximum of 1.00  AMA PRA Category 1 Credit(s)™. Physicians should claim only the credit commensurate with the extent of their participation in the activity.

Successful completion of this CME activity, which includes participation in the evaluation component, enables the participant to earn up to:

  • 1.00 Medical Knowledge MOC points in the American Board of Internal Medicine's (ABIM) Maintenance of Certification (MOC) program;;
  • 1.00 Self-Assessment points in the American Board of Otolaryngology – Head and Neck Surgery’s (ABOHNS) Continuing Certification program;
  • 1.00 MOC points in the American Board of Pediatrics’ (ABP) Maintenance of Certification (MOC) program;
  • 1.00 Lifelong Learning points in the American Board of Pathology’s (ABPath) Continuing Certification program; and
  • 1.00 CME points in the American Board of Surgery’s (ABS) Continuing Certification program

It is the CME activity provider's responsibility to submit participant completion information to ACCME for the purpose of granting MOC credit.

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