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Centering Transgender and Nonbinary Voices in Genital Gender-Affirming Surgery Research Prioritization

To identify the key insights or developments described in this article
1 Credit CME

Genital gender-affirming surgery (GAS) is an umbrella term used to describe reconstructive procedures aimed to alleviate dysphoria related to genital anatomy for transgender and nonbinary (TGNB) individuals. Demand for GAS has grown,1 yet research on how TGNB patients perceive quality of care and surgical outcomes is scant. Notably, existing GAS studies have lacked community engagement, which limits their utility and may perpetuate harmful research practices. High-quality comparative effectiveness research studies using a patient-centered approach are needed to inform shared decision-making, develop best techniques and perioperative management strategies, and identify gaps in payers’ decisions about coverage of GAS and ancillary care.

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Article Information

Corresponding Author: Geolani W. Dy, MD, Department of Urology, Oregon Health & Science University, 3303 SW Bond Ave, CH-10U, Portland, OR 97239 (dy@ohsu.edu).

Published Online: May 11, 2022. doi:10.1001/jamasurg.2022.1049

Conflict of Interest Disclosures: None reported.

Funding/Support: This work was funded through a Patient-Centered Outcomes Research Institute (PCORI) Engagement Award (18835).

Role of the Funder/Sponsor: The funder had no role in the preparation, review, or approval of the manuscript or decision to submit the manuscript for publication.

Disclaimer: The statements presented in this publication are solely the responsibility of the authors and do not necessarily represent the views of PCORI or its board of governors or methodology committee.

Additional Contributions: We acknowledge the Transgender and Non-Binary Surgery Allied Research Collective (TRANS-ARC) steering committee for their invaluable contributions to this work, including Ina Amarillo, PhD; Cris Avery; Madeline Deutsch, MD, MPH; John Gore, MD, MS; Robin Knauerhase; Mary Marsiglio, PhD; Amy Penkin, LCSW; Sachiko Ragosta; Naiymah Sanchez; Jae Sevelius, PhD, and Liz Sage, MPH. We also thank the stakeholders who joined us in this process for trusting the TRANS-ARC steering committee to steward their experiences. The knowledge they shared of themselves and their communities is central to this article.

References
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